Chronic Disease Surveillance and Research Branch

group of people, doctor, cancer cells and bar graph

The Chronic Disease Surveillance and Research Branch (CDSRB) is committed to serving the public by collecting statewide data about cancer, Parkinson's disease, and chronic disease risk factors; making chronic disease surveillance data available to public health practitioners and qualified researchers; conducting chronic disease surveillance; and communicating surveillance results to the public. In addition, the Branch provides leadership for, and coordination of, California's statewide comprehensive cancer control efforts based on the concept that people and organizations working together to identify problems and develop solutions will lead to better use of limited resources and generation of new resources through new partnerships. CDSRB implements these activities by directing, managing, and monitoring the state-mandated Ken Maddy California Cancer Registry (CCR), California’s Comprehensive Cancer Control Program (CCCP), the Richard Paul Hemann California Parkinson’s Disease Registry (CPDR), the California Behavioral Risk Factor Surveillance System (CBRFSS), and the California Neurodegenerative Disease Registry (CNDR).

Announcements Your Facilities Can Now Report Alzheimer’s Disease Cases If you are interested in reporting Alzheimer’s Disease case encounters, you can start voluntarily reporting to the California Neurodegenerative Disease Registry (CNDR). More information about Alzheimer disease reporting, please click the link to the guide Neurodegenerative Disease Guide to Reporting (PDF).

Amyotrophic Lateral Sclerosis (ALS): September 30, 2024
To view the listening sessions please click on the links below: CNDR ALS Virtual Listening Session, Morning (MP4 - 109 MB) CNDR ALS Virtual Listening Session, Afternoon (MP4 - 104 MB) If you have any additional questions about the CNDR, please send your inquiries to CDSRBhelp@cdph.ca.gov email and we will be happy to respond.
Multiple Sclerosis and Alzheimer’s Disease: January 17–18, 2023
To view the listening sessions please click on the links below: CNDR - Data Providers Virtual Listening Session, January 17, 2023 (MP4 - 112 MB) CNDR - Data Users Virtual Listening Session, January 18, 2023 (MP4 - 98 MB) If you have any additional questions about the CNDR, please send your inquiries to CDSRBhelp@cdph.ca.gov email and we will be happy to respond.

Legislation Updates
On October 13, 2023, Governor Newsom signed Senate Bill (SB) 344 into law (SB 344 Chaptered), authored by the California Legislature. This legislation makes amendments to the Health and Safety Code § 103885 and will go into effect on January 1, 2024.
Assembly Bill (AB) 424, was signed into law by Governor Gavin Newsom on October 8, 2023. AB 424 amends Health and Safety Code (HSC) 103871. One of the changes is that HSC 103871 section (b) was amended by adding the following words, “…include, but not be limited to, amyotrophic lateral sclerosis also known as Lou Gehrig's disease.” Click the link to access the Chaptered version of AB 424.